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is surgery the only option?

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This topic contains 1 reply, has 2 voices, and was last updated by  Leslie Edwin 3 months, 4 weeks ago.

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  • #6585

    jrichesd
    Participant

    My doctor wants me to get to further tests for cushing’s. I’m reading up more on it and it’s hard to say since it overlaps with other diseases. Is surgery the only option if it turns out cushing’s is what is wrong? Has anyone had the radiation or medications instead? I never had any major surgery and I’d be really scared to go through with it especially something so close to the brain. Since I’ll have to go to a specialist maybe they can also test more for thyroid disorders since I felt that’s what was causing my symptoms from the beginning. I read hypothyroid can also cause a fat pad between the shoulders.

    #6611

    Leslie Edwin
    Keymaster

    Hi, sorry for the delay, we are phasing out the forums and I missed this post.

    If you have a tumor that is causing Cushing’s, surgery is still the first line of treatment recommended across the board. I hadn’t ever had major surgery when I got mine, and it is very scary to imagine having a brain tumor, then to imagine having to have surgery inside your skull! Peer support can greatly help to understand what to expect and ways to cope with the emotions that go with it.

    It would be a very good idea to have a full hormone panel, in fact. In addition to disregulated cortisol, you may also uncover other hormonal fluctuations that are contributing to your illness. Many endocrine diseases do mimic each other, you are right. If you have access to one, you will definitely benefit from a specialist who has seen hundreds or thousands of Cushing’s patients. Good luck!

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