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My mom and I need education and resources.

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This topic contains 3 replies, has 3 voices, and was last updated by  Leslie Edwin 2 months, 2 weeks ago.

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  • #6616

    Iveyeva
    Participant

    Hi my name is Ivey. I’m asking in regards to my mother, she has Cushing’s. I’m looking for any support groups in Arizona. My mother had a pituitary tumor removed 3 years ago due to Cushing’s. The Cushing’s is back and she is currently taking the ketoconazle to see if it will help. My mother is scared and suffering from depression which as I’ve read is a side effect of the disease. I just am trying to look into other options. Or any support for my mother thank you!

    #6649

    Leslie Edwin
    Keymaster

    Hi Ivey – Elaine Thobe in Mesa is on our support group and contact list – her phone number is 949-285-8612, e-mail [email protected]. I hope that is close to you!

    #6890

    Dennis
    Participant

    Dear Ivey,

    I am suffering from Cushing’s Disease which was diagnosed in 2013. Despite having scans yearly, the tumour can’t be found – that happens to about 30% of Cushing’s patients. I have now been taking Ketaconazole for 7 years. I am actually doing quite well. Whilst I would like to know exactly where the tumour is so I have the option of the operation, I am not sure that I won’t continue with the Ketaconazole.

    #7011

    Leslie Edwin
    Keymaster

    **We apologize for the extremely tardy upload of your post. Please see Forum Slow Down topic for more information.**

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