I was diagnosed with UCTD in December, put on 30mg of prednisone daily along with Plaquenil, the idea being that as the Plaquenil got in my system I would taper off the prednisone and the Plaquenil would control my joint pain. I wound up having a SCAR reaction to the Plaquenil, I was taken off of it and boosted the prednisone to 60mg a day. I was eventually hospitalized and admitted to the local burn unit with AGEP, about 95% of the skin on my body blistered up and eventually sloughed off. After getting out of the hospital, I stayed on 60 mg a day of prednisone for a couple of months; Plaquenil has an unusually long half life, every time they tried to taper me off the prednisone I’d start breaking out again. 6 months later, I’m still taking 20 mg a day of prednisone and I have developed Cushing Syndrome. My question for other people who have had prednisone induced Cushings is….how long should I expect my recovery time to be after I finally get off the prednisone? I didn’t get this way overnight, and I don’t expect to recover overnight. But doctors won’t give any idea how long it might take me to get back to normal, I’d just like to have a general idea.
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