Hello, Bonjour, Hola!

The Cushing’s Support and Research Foundation (CSRF) and the World Alliance of Pituitary Organizations (WAPO – wapo.org) are conducting a global survey to gather patient opinions about quality of life and the journey with Cushing’s. We understand that living with Cushing’s poses numerous challenges, and we deeply appreciate your willingness to share your experiences. 

 

CLICK HERE FOR FREQUENTLY ASKED QUESTIONS:     ENGLISH     FRENCH     SPANISH

 

If you are 18 years of age or older and have been diagnosed with Cushing’s, you qualify to participate in this project.  If you do not currently fit this criteria, we will have additional opportunities in the future. 

By participating in this survey, you are contributing to a collective effort that aims to enhance understanding, promote better care, and improve the lives of individuals affected by this condition worldwide. We will first report our findings at the World Alliance of Pituitary Organizations Summit in Buenos Aires, Argentina on October 6, 2023.  Afterwards, a detailed report will be shared with all participating individuals and organizations, and there will be additional opportunities to share our story over the next year at conferences.

Your voice matters, and we are grateful for your time and input.  The survey opens on Monday, August 28, and will remain open until midnight EST on September 15.

 

CLICK HERE FOR THE SURVEY IN:    ENGLISH    FRENCH    SPANISH

 

 

TIMELINE

August 28: Launch survey, to end September 15

September 1-9: Reminders sent out

September 16-30: Analysis of survey results, create presentation

October 7: Present at WAPO Summit, Buenos Aires

October-November: Create report and distribute to all participants

 

CLICK HERE TO LEARN MORE ABOUT PREVIOUS STUDIES AND WHY WE DO THEM

IF YOU HAVE QUESTIONS, PLEASE REACH OUT:

GRETCHEN JORDAN, PROJECT ADMINISTRATOR: [email protected]

LESLIE EDWIN, CSRF PRESIDENT: [email protected]