Director of Pediatric Programs NICHD, NIH , Bethesda, Maryland
Board Member since 2005
Meg F. Keil. Ph.D., C.R.N.P. is a pediatric nurse practitioner and researcher with the National Institute of Child Health and Human Development at the National Institutes of Health in Bethesda, Maryland. Dr. Keil received a Bachelor of Science in Nursing, with a minor in psychology from Georgetown University in 1980 and a Master’s degree in pediatric ambulatory nursing from the University of Colorado in 1983. She received a Ph.D. in Nursing from the Uniformed Services University of the Health Sciences in 2011. Her current research focuses on pediatric Cushing syndrome, biobehavioral outcomes of early life adversity, and quality of life and other outcomes associated with chronic endocrine disorders in children. Dr. Keil has authored or co-authored numerous articles on pediatric endocrine disorders, including Cushing syndrome, congenital adrenal hyperplasia, obesity, and pituitary tumors.
In her current position at the Patient Access Network, Emily’s work focuses on improving access to medications for underinsured patients with chronic or life-threatening illnesses through which she channels many of the patient experiences she has learned of through the CSRF. She is passionate about helping patients with rare diseases and strives to improve the quality of life of each patient she encounters by helping them navigate the sea of resources available, or even just by lending an ear. Emily is a graduate of the University of Kentucky Gatton School of Business with a focus in marketing.
Director since 2014
Elissa is a product manager at Zillow. She earned her MBA from the Tuck School of Business at Dartmouth. While in business school Elissa had leadership roles in the Technology Club, Media Club, and was a Fellow in the Center for Digital Strategies. She has a particular interest in using social media for non-profits. Elissa has been helping the CSRF in numerous areas over the past several few years and she will now be responsible for CSRF’s continuing website work, database and presence on social networks.
Prior to business school, Elissa spent four years working in advertising sales and operations at the Wall Street Journal. During this time she was also the co-director of Cents Ability, a non-profit dedicated to teaching teens the fundamentals of financial literacy.
Elissa developed symptoms of Cushing’s Disease while an undergraduate at Harvard, from which she graduated with honors in 3.5 years. Immediately after graduation, she sought treatment at Mount Sinai Hospital in New York with Dr. Kalmon Post. She has been in remission for 10 years.
Director since 2015
Leslie Edwin, Director of Support Groups serves as the contact person for all support groups, helps with the establishment of new groups and coordinates with all group leaders. Leslie was diagnosed with Cushing’s Disease in late Summer 2012 after a rapid onset of textbook symptoms. Through the swift action of an informed gynecologist and endocrinologist, she was fortunate to not experience much delay in the process leading to transsphenoidal surgery in December 2012. Another surgery in January 2013 resulted in hypophysectomy; a CSF leak and meningitis followed soon after. Under the expert care of Dr. Nelson Oyesiku and Dr. Adriana Ioachimescu at Emory University Hospital, Leslie achieved “remission” in April 2013.
Leslie split the majority of the last two decades between the Financial Services Industry and self-employment as a Private Chef. Leslie has worked with the Girl Scouts in almost every position for 13 years, is on the Board of the Lilburn Community Partnership, and recently became President of the newly-formed Lilburn Lions Club. She feels fortunate to be able to dedicate a good portion of time to these groups and the CSRF. “After the intensity of the Cushing’s experience, it was impossible not to get involved to do whatever I can to make the process easier for people in all phases of the disease. I also want to ‘pay it forward’ to honor the doctors, specifically Dr. Oyesiku, who were instrumental in bringing me back to life. “
The Cushing’s Support and Research Foundation is a non-profit organization incorporated in the state of Massachusetts to provide support and information to those interested in Cushing’s. This Web Site is for informational purposes only, and does not replace the need for individual consultations with a physician. CSRF does not engage in the practice of medicine, endorse any commercial products, doctors, surgeons, medications, treatment, or techniques. The opinions expressed on this web site are those of the individual author and do not necessarily reflect the views of individual officers, doctors, members, or health care providers.
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