On October 24, 2015, Dr. Susan Webb gave a presentation on quality of life for Cushing’s patients and answered patients’ questions.
See slides that did not appear properly during the presentation.
Dr. Webb was born in Barcelona, where she attended medical school; she completed her Endocrinology training in London and the US. She is currently full Professor of the Department of Medicine of the Universitat Autònoma de Barcelona (UAB), and leader of a clinical research group on Pituitary Diseases, Unit 747 of CIBERER (Spanish network of excellence in Rare Diseases), she works at the Institut de Recerca and Dept Endocrinology of the Hospital de Sant Pau in Barcelona (Spain). She has over 35 years of clinical experience in Endocrinology.
Her research group is patient-oriented, with a clear translational component to the health system, and has extensive research experience on Cushing’s syndrome (CS), acromegaly and pituitary diseases in general, both clinically and scientifically. 5 PhD Thesis have been presented in the last 5 years, on studies that complement the clinical experience of this group, particularly on the long-term consequences of having suffered acromegaly and CS (mainly cardiovascular, osteoporosis, muscular atrophy, neuropsychological impairments and reduced health related quality of life). This group is the coordinator of the European Register on Cushing’s Syndrome (ERCUSYN project), initially funded by the European Commission Public Health Program (2007-2010), and includes partners from 50 centers in 28 countries, and, after 7 years, contained data on over 1,000 patients.
She is a reviewer for most endocrine journals and has served on the editorial boards of JCEM, Pituitary and Endocrine. She has been President of the Spanish Endocrine Society (1996-99), a member of the Executive Committee of Eur Fed of Endocrine Societies (2001-2005), Secretary of ENEA (2000-2004) and in 2014 she was elected to the ExCo of the European Society of Endocrinology. She is co-author and owner of the copyright of disease-generated questionnaires to evaluate health related quality of life in patients with Cushing’s syndrome and acromegaly (AcroQoL and CushingQoL), used worldwide, and translated into 40 languages.
She has been a member of EUCERD (European Commission of Experts on Rare Diseases) and has authored over 200 papers, mostly related to pituitary and other rare endocrine diseases.