Cushing’s Awareness Day 2023 – Advocacy Project

CSRF Members and Friends have been invited to create collages and essays chronicling their experience with Cushing’s, to be shared in honor of Cushing’s Awareness Day 2023 on April 8.  To learn more about this date and Dr. Harvey Cushing, click here.



I am rare…and a HERO to myself.  I was able to endure, push for diagnosis and recover from the hardest battle I’ve ever had to fight with Cushing’s Disease…(read more here) 



I used to sleep like a baby, but I started to wake up in the middle of the night, they told me it was aging, I was 43…(read more here) 


I am rare and have endured, fought, and recovered from a long journey with Cushing’s Disease. Endogenous Cushing’s takes way to long for patients to be diagnosed; I believe I had symptoms for 15 years…(read more here)  


I am rare, but I am a mom. Here’s my story…

I was diagnosed with Cushing’s disease in August of 2019. I had been experiencing an array of debilitating symptoms for years…(read more here)  


I am rare and a fighter!  

After years of gaining weight without reason, bruising, uncontrollable high blood pressure, fatigue, diabetes, and being told to eat healthier and exercise, I was FINALLY diagnosed with Cushing Syndrome.  Two surgeries later…
(read more here)  


I am rare…

and I am in the middle of my Cushing’s journey as I write to you from my home in Sackville, New Brunswick, Canada. My story is similar to many I have read in that it took years to get a diagnosis. Like others, I was referred to many specialists,…
(read more here)  


I am rare, but the impact of the word “rare” has changed after spending yeas in the midst of so many other rare patients like myself. Our commonalities, shared struggles and goals for an enjoyable, livable “new normal” after surviving Cushing’s have removed all potential for isolation from my life……(read more here)


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