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CSRF Represented at the Pituitary Congress and Endo 2017

Late March and early April was a busy and exciting time for the CSRF! From March 29 -31, 2017, President Louise Pace, John Gulielmetti and Karen Campbell attended the Pituitary Congress. We had a display table outside the meeting room and our newsletters were well received. The Pituitary Congress gathers top notch physicians and researchersContinue Reading

Collaboration is Key: WAPO Summit

Collaboration – between patient organizations and between patients, medical professionals, and others – was the theme of the 2nd annual Summit of the World Alliance of Pituitary Organizations (WAPO) held this past May in Amsterdam. When we share our knowledge and experience, everyone benefits. I attended to represent CSRF, which is a founding member. InContinue Reading

Summary of 2016 Barrow Pituitary Center Patient Education Day

On Saturday, May 14, 2016 the Barrow Pituitary Center, in Phoenix, AZ, held a patient education day. A number of CSRF members from Southern California and the Phoenix area joined Dawn Herring and Karen Campbell at the event. The meeting of about 125 patients was very informative, as was the opportunity to talk with otherContinue Reading

CSRF Supports NORD at American Medical Student Association Exhibit

As part of an outreach to medical students, the National Organization of Rare Disorders (NORD) exhibited at the annual convention of the American Medical Student Association in Washington DC on Feb. 27 and 28, 2015. Mary Dunkle from NORD says, “Prior discussions with medical students indicated a lack of understanding of how and why havingContinue Reading

All Around the World! The 3rd Annual Global Pituitary Patient Advocacy Meeting, 2014

This year I had the privilege of attending the third annual Global Pituitary Patient Advocacy Meeting in Zurich, Switzerland, representing the Cushing’s Support and Research Foundation from the United States.The purpose of this meeting was to formally create an international organization of groups who advocate for those affected by pituitary disease.  Speakers included Rob CampContinue Reading