My journey with Cushing’s Disease started in high school, though I didn’t know what it was at the time. From my junior to senior year, I gained over 100 pounds and didn’t know why. My doctors and parents attributed it to depression caused by my parents’ divorce.… Continue Reading
Category Archives: Patient Stories
Rachel W., Pituitary Tumor
Date: September 24, 2014 | Tags: 30-39, female, Pituitary tumor, recurrence, Tennesee, Transsphenoidal surgery, USA
Van N., Adrenal Tumor
Date: September 24, 2014 | Tags: 20-29, Adrenalectomy, female, Texas
I am a twenty four year-old female who had an adrenal tumor. My main symptoms were depression, anxiety, panic attacks, insomnia, acne, body hair, fatigue, joint pain, no menstrual cycle, and hair loss. … Continue Reading
Nicole R., Medication Induced Cushing’s, Pituitary Tumor
Date: September 24, 2014 | Tags: 40-49, California, female, medication induced Cushing's, Pituitary tumor
I have always been an active, slim and healthy person, but about 2 years ago that changed. I woke up with horrible shoulder pain that progressively got worse. I eventually went to my GP and got a cortisone shot in my shoulder. It worked for a bit but 3 months later, I needed another.… Continue Reading
Tony H., Ectopic Cushing’s
Date: September 23, 2014 | Tags: 30-39, Ectopic tumor, Georgia, lung tumor, male
My name is Tony and I live in Georgia. I have been married for 10 years and have 2 amazing children (5 and 10). I am now 38 years old, have had Cushing’s syndrome and this is my story:
Nearing the end of summer in 2011, my wife and I began to notice changes…fast weight gain (we tried every diet known with no success), large stretch marks, acne breakouts on the back and chest, mood swings and issues with anger outbursts, weakness in muscles, ankles that would dislocate all the time and bruise badly, cracked and broken ribs from doing hardly nothing, and the list goes on and on.… Continue Reading
Leslie E., Transsphenoidal Pituitary Surgery
Date: January 28, 2014 | Tags: 30-39, female, Georgia, Petrosal Sinus Sampling, recurrence, Transsphenoidal surgery
I am married and have two daughters, ages 6 and 17. We discovered that I had a pituitary tumor in the summer of 2012, and I had a series of surgeries between December 2012 and February 2013. My symptoms were unavoidable by spring 2012, but looking back, I think my tumor was starting to “zap” me in 2010 with bouts of acne, an irregular period, small amounts of weight gain, and general feelings of being unwell.… Continue Reading
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