Print Friendly, PDF & Email

Tag Archives: recurrence

Simrita K., Transsphenoidal Pituitary Surgery, Recurrence

Click here to contact this member

Simrita photo
My name is Simrita. I am a 39 year old, unmarried English teacher. I started my career in 1997 in India as an English language teacher while staying with my grandparents. My students were top performers but I was forced to discontinue this career and join my family in Abu Dhabi in the United Arab Emirates. After a few years of decent living, all the problems started.

I had frequent fractures, suffered severe depression, severe anxiety, and was on antidepressants. I developed amenorrhoea, was on medication for that and I bruised easily. I kept gaining weight and kept trying to lose it. I saw doctors from almost all of the departments in the hospital. Finally, after 2 years, all my troubles reached their peak and in March of 2013 my weight touched 90 kg (198 lbs) from 60 kg (132 lbs). My abdomen was very heavy, so much so that it became difficult to carry myself. Pains soared and I felt that something was very wrong. I saw an endocrinologist in June of 2013, and after looking at me, he suspected Cushing’s disease. My 24 hour urine tests showed cortisol (257 UG) range (0-50) and an MRI showed a (3.7mm) microadenoma in the left half of the pituitary. I was rushed to India for surgery.

One and half years later in February of 2015, I started experiencing the same symptoms again. My muscles were painful while exercising, my period stopped, my weight started soaring and depression seeped in. My head started hurting and I was rushed in for an MRI. Blood work showed high cortisol again (127ug). An MRI suggested a 5.4mm pituitary adenoma in the right side of pituitary, although nothing was clearly visible. I was rushed to India for a second surgery and was told it was a re-occurrence.

It is now a year after my second surgery and I am recovering. My tests show cortisol below range which means my pituitary is not functioning correctly. I am on 40 mg of hydrocortisone daily split 20mg -10mg -10 mg. Recovery is proving very difficult and I wish to be free from steroids and lead a normal life again.

To all readers, I am always here and I am in need of your support and any helpful advice as I continue battling this disease until I get free from this with GOD’s blessings… I would really like to hear from you!

Member number: 153021

Newsletter: Spring, 2016

Location: Abu Dhabi, United Arab Emirates

Kathleen C., Persistent Cushing’s

My name is Kathleen and I presently have Cushing’s disease due to an inoperable ACTH secreting pituitary tumor. I was born in 1950 and am married with two great sons and a wonderful one and a half year old grandson. My husband and I have lived in the small, rural town of Mt. Shasta, CA at the foot of the mountain with the same name since 1979.Continue Reading

Rachel W., Pituitary Tumor

My journey with Cushing’s Disease started in high school, though I didn’t know what it was at the time. From my junior to senior year, I gained over 100 pounds and didn’t know why. My doctors and parents attributed it to depression caused by my parents’ divorce.Continue Reading

Leslie E., Transsphenoidal Pituitary Surgery

I am married and have two daughters, ages 6 and 17. We discovered that I had a pituitary tumor in the summer of 2012, and I had a series of surgeries between December 2012 and February 2013. My symptoms were unavoidable by spring 2012, but looking back, I think my tumor was starting to “zap” me in 2010 with bouts of acne, an irregular period, small amounts of weight gain, and general feelings of being unwell.Continue Reading

Sandra B., Pituitary Transsphenoidal Surgery, Recurrence, Radiation

I was incorrectly diagnosed for many years, but almost 20 years from my 1st pituitary surgery of 3, pituitary radiation, follicular lymphoma, chemotherapy and radiation to the duodenum, I am happy to report that I am finally better than I have been in years. The journey has not been easy or predictable; however,Continue Reading