I’ve been waiting to write my story for the CSRF newsletter until it had a happy ending and I had some fabulous “after” pictures to share where I looked like my pre-Cushing’s self again. I don’t know if or when that will happen, and I feel that this is the right time to share my journey with this insidious disease.… Continue Reading
Category Archives: Patient Stories
Kristie H., Pituitary Transsphenoidal Surgery, Recurrence, Radiation
Date: April 6, 2013 | Tags: 20-29, female, Gamma Knife, Idaho, ketoconazole, Pituitary Radiation, Pituitary tumor, recurrence
Eugene F., Transsphenoidal Pituitary Surgery
Date: April 6, 2013 | Tags: 60+, male, Pituitary tumor, Texas, Transsphenoidal surgery
There is interest in the CSRF on recovering from the Cushing’s experience. Each of us is unique in these experiences but they are very much similar. In my early sixties after a lifetime of good health I began having many symptoms familiar to all of you.… Continue Reading
Linda W., Adrenalectomy, Stroke
Date: April 6, 2013 | Tags: 50-59, Adrenalectomy, female, South Carolina, stroke
My story is a little different than those I have read so far. I wanted to write about what happened to me. I found out about Cushing’s syndrome in 2008 but had aphasia (lack of ability to speak or understand language following a brain injury), dyslexia and very limited communications ability. Currently I write well enough with some editing to share my story.… Continue Reading
Andrea H., Pituitary Transsphenoidal Surgery
Date: December 6, 2012 | Tags: 20-29, Pituitary tumor, Tennesee, Transsphenoidal surgery
I’ve always been a little chubby my entire life. When I gained a significant amount of weight my senior year of high school, I never thought twice about it. Soon after I graduated in 2009 and started working, I had my first panic-anxiety attack.… Continue Reading
Kim B., Pituitary Transsphenoidal Surgery
Date: September 6, 2012 | Tags: 20-29, California, female, Petrosal Sinus Sampling, Pituitary tumor, Transsphenoidal surgery
My Cushing’s story seems to be a little different than most others that I’ve read about. Not in the sense of the disease itself, but the process of diagnosis. Being that I’m not quite sure when exactly I acquired it, I might as well just give some background of my life as to what probably contributed to its existence.… Continue Reading
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