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Category Archives: Patient Stories

Jessi D., Adrenalectomy

I was diagnosed with Cushing’s syndrome when I was 17-years-old. For 5 years I went to many different doctors and they couldn’t diagnose my symptoms: weight gain, high blood pressure, thin hair, depression and irregular periods. When I was 17 my mother decided to Continue Reading

Ross H., Ectopic

Don’t give up. Keep fighting. Believe. There is hope. I am writing this story on behalf of my father, Ross, who was diagnosed with Cushing’s Syndrome a little over 4 years ago. Continue Reading

Marie R., Transsphenoidal Pituitary Surgery

“YOU! DO! NOT! HAVE! CUSHING’S!” My endocrinologist yelled after I requested more testing despite three negative 24 Hour Urine Free Cortisol tests and a below normal Low Dose Dexamethasone test. “YOU! CAN’T! PROVE! THAT!” I yelled back while my mind desperately reeled for more arguments, more statistics, more anything to get another test for Cushing’s.Continue Reading

Chris S., Adrenal Tumor

My story is very similar to the others that you’ll see here, with one notable exception; I’m a man! I find it interesting that the vast majority of experiences here are from women. I understand that Cushing’s is more common in women, but not to this extent. I suppose men just aren’t as comfortable sharing their experiences. Another difference for me is that I never really felt sick prior to my diagnosis.Continue Reading

Marlene B., Transsphenoidal Pituitary Surgery, Bilateral Adrenalectomy

My battle with Cushing’s follows the basic pattern. My problems began long before I had ever heard of Cushing’s. I had a pretty good life…no, it was a GREAT life – married with 4 healthy active children. I wasn’t exactly a stay at home mom but my work always involved my children.Continue Reading

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