I feel like I must begin my personal story of Cushing’s disease by first acknowledging that I am one of the “lucky ones” that this disease has happened upon. Maybe I feel the need to tell the story this way to remind myself that I am in fact one of the lucky ones, especially in… Continue Reading
Category Archives: Patient Stories
Angela R., Transsphenoidal Pituitary Surgery
Date: December 17, 2017 | Tags: 30-39, female, Pituitary tumor, Transsphenoidal surgery, Virginia
Erica M., Transsphenoidal Pituitary Surgery
Date: December 17, 2017 | Tags: 40-49, female, Massachusetts, Pituitary tumor, Transsphenoidal surgery
How do I start my story about my journey with Cushing’s? In May 2011, I had a severe anxiety attack, and that’s what I consider “the day it all started.” Hindsight tells me that I had symptoms for years before but they were not severe enough or were attributed to something else. The anxiety attack… Continue Reading
Susan W., Bilateral Adrenalectomy, Pituitary Tumor
Date: May 4, 2017 | Tags: 60+, Arizona, Bilateral Adrenalectomy surgery, female, Pituitary tumor
Cushing’s: A perspective nearly 40 years later: My experience with Cushing’s has spanned 40 years, from the onset of seemingly innocuous symptoms, through the frightening feeling of losing control as this disease ravaged my body, and finally to diagnosis and treatment.
… Continue Reading
Valerie V., Transsphenoidal Pituitary Surgery
Date: May 4, 2017 | Tags: 60+, female, North Carolina, Pituitary tumor, Transsphenoidal surgery
I’m a 70-year-old retired female from North Carolina (just outside Asheville), and this is my Cushing’s story. Over the last 2 years, my husband noticed a change in my behavior, as well as some physical changes. We both thought these health issues were related to diabetes 2 (non-insulin) which I’ve had for 6 years.… Continue Reading
Zoann M., Medication Induced Cushing’s
Date: May 4, 2017 | Tags: 50-59, female, medication induced Cushing's, Washington
My Life with Asthma: Medication Induced Cushing’s Syndrome: My journey to Cushing’s began in gym class. I was 12 years old and was assigned to run the 400-meter sprint in a track meet. This wasn’t a great fit for someone with coughing fits when I ran. While practicing, I collapsed from coughing and passed out. My mother and doctor suspected a heart issue because I didn’t have wheezing, a classic asthma symptom.… Continue Reading
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