I am married and have two daughters, ages 6 and 17. We discovered that I had a pituitary tumor in the summer of 2012, and I had a series of surgeries between December 2012 and February 2013. My symptoms were unavoidable by spring 2012, but looking back, I think my tumor was starting to “zap” me in 2010 with bouts of acne, an irregular period, small amounts of weight gain, and general feelings of being unwell.… Continue Reading
I was incorrectly diagnosed for many years, but almost 20 years from my 1st pituitary surgery of 3, pituitary radiation, follicular lymphoma, chemotherapy and radiation to the duodenum, I am happy to report that I am finally better than I have been in years. The journey has not been easy or predictable; however,… Continue Reading
I want to share the story of my Dad and myself because this “rare” disease knocked on our family’s door not only once, but twice. I also want people to know that you have to be your own health advocate. You know your body and when something is not right with it!… Continue Reading
My story begins well before April 2010, but I will never know exactly when. That is the deception of this horrible disease, it creeps up on you and takes over your body gradually. In 2009 my husband and I were relocated from Michigan to Wisconsin due to job loss. Now that I think back on it, I am grateful it happened. … Continue Reading
Hi there. I have been a member I guess since 1995. I am Rita. I have written 2 stories about my journey with Cushing’s for the newsletter. I have been in remission for 8 years since my second session with this disease. I had the Gamma Knife… Continue Reading
