I was incorrectly diagnosed for many years, but almost 20 years from my 1st pituitary surgery of 3, pituitary radiation, follicular lymphoma, chemotherapy and radiation to the duodenum, I am happy to report that I am finally better than I have been in years. The journey has not been easy or predictable; however,… Continue Reading
Tag Archives: female
Barb G., Transsphenoidal Pituitary Surgery
On a Monday in early 2011 I took prednisone to relieve pain in my knees. Tuesday, I went to get my haircut, and Wednesday I looked in the mirror to check out my new style. I could not believe what I saw. One side of my face was normal, and the other side was puffy. What was that all about? The puffiness was very slight, but nevertheless it was a change from my normal appearance.… Continue Reading
Kristie H., Pituitary Transsphenoidal Surgery, Recurrence, Radiation
I’ve been waiting to write my story for the CSRF newsletter until it had a happy ending and I had some fabulous “after” pictures to share where I looked like my pre-Cushing’s self again. I don’t know if or when that will happen, and I feel that this is the right time to share my journey with this insidious disease.… Continue Reading
Linda W., Adrenalectomy, Stroke
My story is a little different than those I have read so far. I wanted to write about what happened to me. I found out about Cushing’s syndrome in 2008 but had aphasia (lack of ability to speak or understand language following a brain injury), dyslexia and very limited communications ability. Currently I write well enough with some editing to share my story.… Continue Reading
Kim B., Pituitary Transsphenoidal Surgery
My Cushing’s story seems to be a little different than most others that I’ve read about. Not in the sense of the disease itself, but the process of diagnosis. Being that I’m not quite sure when exactly I acquired it, I might as well just give some background of my life as to what probably contributed to its existence.… Continue Reading
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