I was diagnosed with Cushing’s syndrome when I was 17-years-old. For 5 years I went to many different doctors and they couldn’t diagnose my symptoms: weight gain, high blood pressure, thin hair, depression and irregular periods. When I was 17 my mother decided to … Continue Reading
Tag Archives: female
Marie R., Transsphenoidal Pituitary Surgery
“YOU! DO! NOT! HAVE! CUSHING’S!” My endocrinologist yelled after I requested more testing despite three negative 24 Hour Urine Free Cortisol tests and a below normal Low Dose Dexamethasone test. “YOU! CAN’T! PROVE! THAT!” I yelled back while my mind desperately reeled for more arguments, more statistics, more anything to get another test for Cushing’s.… Continue Reading
Marlene B., Transsphenoidal Pituitary Surgery, Bilateral Adrenalectomy
My battle with Cushing’s follows the basic pattern. My problems began long before I had ever heard of Cushing’s. I had a pretty good life…no, it was a GREAT life – married with 4 healthy active children. I wasn’t exactly a stay at home mom but my work always involved my children.… Continue Reading
Ginger H., Transsphenoidal Pituitary Surgery
As I read stories others had written about their situations with Cushing’s Disease, I laughed, had numerous “me too” moments, and wanted to cry with you. Now I want to share my story, with the hope that it will encourage others and just maybe help someone get a correct diagnosis quicker than I did and get on the road to feeling better.… Continue Reading
Kandis M., Transsphenoidal Pituitary Surgery, Bilateral Adrenalectomy
Never in a million years would I have dreamed I’d be writing a letter like this. All of my life I’d been an active, athletic girl who loved sports, working out, and being physically active. I was a big runner all throughout high school and never had a problem with my weight. In fact, if anything, I was probably too small and people would comment on how “tiny” I was. I was almost 5’4″ and weighed between 110-115 pounds at most. I could eat anything I wanted, never had to worry about dieting, and exercised only because I wanted to, not because I had to.… Continue Reading
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