There isn’t a day that goes by when I don’t think of my experience with Cushing’s Disease. I have constant reminders that my body is not the same, such as my slightly protruding stomach and a few pounds of extra weight I still carry (the endocrinologist says it is as if I had twins), or the few hairs on my chin, times of decreased energy, and what I call ‘brain spasms’ which are moments when my mind short circuits. How do I live through these moments in time?… Continue Reading
Tag Archives: Transsphenoidal surgery
Mariko B., Parent, Pediatric, Transsphenoidal Pituitary Surgery
Monday, August 12, 1996 was another hot summer day in Los Angeles. We had just returned from Los Angeles Children’s Hospital where my son, Dylan, age 8, had just had another MRI on his head. Because Dylan had to undergo anesthesia, he was feeling very tired. The phone rang. It was Dr. Thomas Roe, head of the endocrinology department, with whom we had spent the morning. He had some bad news. He gently broke the news that Dylan had a tumor on his pituitary gland, a condition called Cushing’s Syndrome … Continue Reading
Beth B., Transsphenoidal Pituitary Surgery
Like so many of the other Cushing’s stories, similarly my story starts with years of odd health problems, numerous doctors, no one believing there really was a problem, to finally gaining a great deal of inner strength to believe in myself. Looking back now at pictures from over 10 years ago, we can now see when Cushing’s Disease started for me. In my early 20’s, previously having always been so thin, I gained small increments of weight … Continue Reading
Bruce P., Transsphenoidal Pituitary Surgery
Prior to the onset of Cushing’s, I led a very healthy and active life and was by all accounts sound in mind and body. Early indications were subtle…an increasingly pudgy abdomen and face that wouldn’t trim despite a healthy diet and consistent exercise, and small distinct stretch marks below my navel. I tore a disc, bruised easily and simple wounds would take forever to heal. I retained excess fluid and felt pain in my hips and knees after just one flight of stairs.… Continue Reading
Laurie O., Transsphenoidal Pituitary Surgery
I was diagnosed at the age of 15 by a nurse practitioner who noticed my moon face and hump back. I had lost a lot of hair and wasn’t eating hardly anything. I didn’t want my Mom to find out I wasn’t eating, but I kept gaining weight. For about a year I had trouble sleeping and skipped my period for six months. My first surgery … Continue Reading
FIND THE RESOURCES YOU NEED AT EVERY STAGE
Connect
Contact Us