As I read stories others had written about their situations with Cushing’s Disease, I laughed, had numerous “me too” moments, and wanted to cry with you. Now I want to share my story, with the hope that it will encourage others and just maybe help someone get a correct diagnosis quicker than I did and get on the road to feeling better.… Continue Reading
Category Archives: Patient Stories
Ginger H., Transsphenoidal Pituitary Surgery
Date: August 12, 2009 | Tags: 50-59, female, Georgia, Pituitary tumor, Transsphenoidal surgery
Mark N., Transsphenoidal Pituitary Surgery, Radiation
Date: April 12, 2009 | Tags: 30-39, male, Massachusetts, Medications, Pituitary Radiation, Pituitary tumor, recurrence, Transsphenoidal surgery
Are you misunderstood? Have you been told, it is all in your head? You are fat, get over it. You are depressed; anti depression, medications will help you. Do people look at you differently? These misconceptions are associated with Cushing’s Disease. Living with Cushing’s Disease affects your self- esteem, and injects self-doubt into your daily life routine.… Continue Reading
Kandis M., Transsphenoidal Pituitary Surgery, Bilateral Adrenalectomy
Date: April 12, 2009 | Tags: 20-29, Bilateral Adrenalectomy surgery, female, Maryland, Medications, NIH, Petrosal Sinus Sampling, Pituitary tumor, recurrence, Transsphenoidal surgery
Never in a million years would I have dreamed I’d be writing a letter like this. All of my life I’d been an active, athletic girl who loved sports, working out, and being physically active. I was a big runner all throughout high school and never had a problem with my weight. In fact, if anything, I was probably too small and people would comment on how “tiny” I was. I was almost 5’4″ and weighed between 110-115 pounds at most. I could eat anything I wanted, never had to worry about dieting, and exercised only because I wanted to, not because I had to.… Continue Reading
Shannon G., Transsphenoidal Pituitary Surgery
Date: April 12, 2008 | Tags: 40-49, female, Ilinois, Petrosal Sinus Sampling, Pituitary tumor, Transsphenoidal surgery
I use to wonder how many diseases it would take before I’d be placed into The Guinness Book of World Records. In nine years, I’d been diagnosed with clinical depression, high blood pressure, type II diabetes, PCOS, endometriosis, obesity, adult cystic acne, ocular hypertension leading to possible glaucoma, sarcoid uveitis, metabolic disease, and panic attacks. This is the same person who just a few years prior had been a cheerleader, worked out sometimes twice a day, taught Jazzercise, and used free time biking, walking or roller blading along the lakefront downtown Chicago.… Continue Reading
Pat G., Transsphenoidal Pituitary Surgery
Date: December 12, 2007 | Tags: 40-49, Colorado, Pituitary tumor, Transsphenoidal surgery
There isn’t a day that goes by when I don’t think of my experience with Cushing’s Disease. I have constant reminders that my body is not the same, such as my slightly protruding stomach and a few pounds of extra weight I still carry (the endocrinologist says it is as if I had twins), or the few hairs on my chin, times of decreased energy, and what I call ‘brain spasms’ which are moments when my mind short circuits. How do I live through these moments in time?… Continue Reading
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