Adham Khalafallah, MD Nicholas Rowan, MD Debraj “Raj” Mukherjee, MD, MPH Cushing’s syndrome (CS) is a rare endocrine disorder caused by chronic exposure to excess cortisol, with an annual incidence of 10 –15 cases per million.1 CS manifests with many physical problems, including central obesity, hypertension, hirsutism, muscle weakness, gonadal dysfunction, and hyperglycemia, as well… Continue Reading
Author Archives: Isabel Paterson
Things We Wish We Had Known
It’s virtually unanimous that Cushing’s patients get past the immediacy of diagnosis and treatment and look back on the process and think “I really wish I would have / would have known….” about pieces of their journey that were particularly difficult in the moment. There are parts of the post-treatment “new normal” that only a… Continue Reading
Research Summaries
Patient-reported outcome questionnaires are frequently used across specialties to help patients explain how their illness or treatment is affecting them. We mention four of these questionnaires in this issue, so we decided to include two summaries of original research published when the questionnaires were created, and two summaries of research reviewing existing questionnaires to evaluate… Continue Reading
World Orphan Drug Congress USA 2019 & World Alliance of Pituitary Organizations (WAPO)
Washington, DC & Lyon, France Spring, 2019 Two scientific conferences in Spring 2019 on opposite sides of the Atlantic showcased promising scientific breakthroughs and tools for Cushing’s and adrenal insufficiency (AI) patients. Teams pitched four drugs under development designed to assist Cushing’s and AI patients at The World Orphan Drug Congress USA 2019 in Washington,… Continue Reading
2019 Conferences
Spring brings pollen, baby birds, short sleeve shirts…and endocrine conferences! We look forward to this time of year because it’s a chance to hear about new science and technology that have become available. We share our resources and make new connections with doctors, nurses, researchers, and other stakeholders. We then translate some of the most… Continue Reading
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