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Author Archives: kkc

Libido During Cushing’s

Question: How is libido affected during active Cushing’s and why? Does this return to normal post Cushing’s? Answer: The effect of Cushing’s on libido has not been well studied and is a complex issue. Many women with Cushing’s report a decrease in libido. The effects of high amounts of cortisol have many effects that mayContinue Reading

CSRF Attends NORD Regional Meeting in Orlando, FL

The National Organization for Rare Disorders (NORD) held a Regional Membership Meeting in Orlando, FL on May 1, 2015. Leslie Edwin attended for the CSRF; also in attendance were representatives from eleven patient organizations and one pharmaceutical company.  To give a little history on NORD, in the decade leading up to the early 1980s lessContinue Reading

Endocrine Society Publishes Clinical Guideline on Treatment of Cushing’s Syndrome

The August issue of the Journal of Clinical Endocrinology and Metabolism includes the recently developed Endocrine Society guideline on the treatment of Cushing’s Syndrome. This guideline, previewed during a presentation at the March, 2015 annual ENDO meeting, was prepared by a task force of experts following an extensive literature review process. The guideline, co-sponsored byContinue Reading

Cyclic Cushing’s syndrome

The term “cyclic Cushing’s syndrome” has been used to describe the presence of spontaneous, intermittent periods of cortisol excess that do not occur as a consequence of glucocorticoid therapy (such as prednisone, hydrocortisone or dexamethasone) or other medical intervention. “Periodic hormonogenesis”, “intermittent hypercortisolism”, “unpredictable hypersecretion of cortisol” and “fluctuating steroid excretion” are additional terms usedContinue Reading

Tiffiny D., transsphenoidal pituitary surgery

My name is Tiffiny. I am a 35-year-old mother of three wonderful little girls. Before Cushing’s, my favorite hobbies were working out daily and competing in 5K running races every Saturday. I could run 3 miles in 23 minutes or less. Continue Reading

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