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Author Archives: kkc

Pediatric Cushing Syndrome: Quality of life and other outcomes

Cushing syndrome (CS) affects children and adolescents in many ways that are different than adults and may be associated with long lasting effects even with successful remission. Early identification and treatment of CS is important, particularly since children have not completed their growth and development. Barriers to optimal care include lack of knowledge about theContinue Reading

In the Medical Literature

It is truly an exciting time to be involved in the study of the molecular mechanisms of Cushing’s! From a patient’s perspective, useful treatments for Cushing’s based on new findings will be a long time in coming, however it is highly encouraging to know that many excellent researchers are involved in this research. The Spring,Continue Reading

CSRF Supports NORD at American Medical Student Association Exhibit

As part of an outreach to medical students, the National Organization of Rare Disorders (NORD) exhibited at the annual convention of the American Medical Student Association in Washington DC on Feb. 27 and 28, 2015. Mary Dunkle from NORD says, “Prior discussions with medical students indicated a lack of understanding of how and why havingContinue Reading

What’s New from Endo 2015?

The annual meeting of The Endocrine Society was held March 5-8, 2015 in San Diego, CA. As usual, the CSRF had a booth on the exhibit floor. The booth was manned by Karen and Dave Campbell, Leslie Edwin, Elissa Kline, Louise Pace and Ellen Whitton. For the first time, we collected names of interested endocrinologistsContinue Reading

Jenifer W., Pituitary Tumor and Surgery

Until about two years ago, Cushing’s Disease was not a part of my vocabulary; neither was cortisol, nor ACTH. Little did I know, these terms were components in the life I had probably lived for decades. Growing up, I’d always been a little bigger than the rest of the girls in my class. Yes, I’d tend to be on the chubby side from time to time, but I was not obese.Continue Reading

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