kkc, Author at CSRF - Cushing's Support & Research Foundation

Author Archives: kkc

Eugene F., Transsphenoidal Pituitary Surgery

There is interest in the CSRF on recovering from the Cushing’s experience. Each of us is unique in these experiences but they are very much similar. In my early sixties after a lifetime of good health I began having many symptoms familiar to all of you.… Continue Reading

Linda W., Adrenalectomy, Stroke

My story is a little different than those I have read so far. I wanted to write about what happened to me. I found out about Cushing’s syndrome in 2008 but had aphasia (lack of ability to speak or understand language following a brain injury), dyslexia and very limited communications ability. Currently I write well enough with some editing to share my story.… Continue Reading

Questions and Answer Period from Cushing’s Patient Education Day, February, 2013

Question: Can Cushing’s be hereditary? Dr. Findling: No, except in very rare circumstances. There are forms of adrenal Cushing’s that can be hereditary. In cases of bilateral adrenal hyperplasia, both glands are enlarged and have tumors and can be hereditary. This is very rare. Single adrenal tumors are not hereditary. There are some isolated reports… Continue Reading

Current practice of glucocorticoid replacement therapy and patient-perceived health outcomes in adrenal insufficiency – a worldwide patient survey

The aim was to survey current practice in glucocorticoid replacement therapy and self-perceived health outcomes in patients with adrenal insufficiency. Methods: Participants were recruited via patient organizations to respond anonymously to a web-based survey developed by clinical experts. Unique entries were set up for each patient organization enabling geographical localization of the entries.… Continue Reading

Andrea H., Pituitary Transsphenoidal Surgery

I’ve always been a little chubby my entire life. When I gained a significant amount of weight my senior year of high school, I never thought twice about it. Soon after I graduated in 2009 and started working, I had my first panic-anxiety attack.… Continue Reading