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Author Archives: kkc

Post-Surgical Recovery in Patients With Cushing’s: Results of an Open-Ended Survey

As Dr. Mary Lee Vance described in the summer 2009 newsletter of the Cushing’s Support and Research Foundation (CSRF), post-operative recovery from Cushing’s syndrome can be long and frustrating. Indeed, previous work has shown that patients continue to have subnormal quality of life even after pituitary and adrenal gland function return to normal. To better… Continue Reading

Post-surgical Recovery in Patients with Cushing’s Syndrome: Comparison of Patient Perceptions and Endocrinology Perspectives

Post-operative recovery from Cushing’s syndrome (CS) can be difficult for patients. Although the impaired health-related quality of life in active CS improves after surgical remission, the quality of life does not normalize in all. Despite extensive research on post-surgical recovery from CS, little research has examined the patient experience recovering from remission of CS. In… Continue Reading

Kim B., Pituitary Transsphenoidal Surgery

My Cushing’s story seems to be a little different than most others that I’ve read about. Not in the sense of the disease itself, but the process of diagnosis. Being that I’m not quite sure when exactly I acquired it, I might as well just give some background of my life as to what probably contributed to its existence.… Continue Reading

Sharlene S., Pituitary Transsphenoidal Surgery, Recurrence, Bilateral Adrenalectoy, Radiation

My story starts at the age of 18, right after I graduated High School in 2003. Just a few weeks after I was done with school my dad passed away at the age of 38 and from then on, I started to gain weight non- stop. … Continue Reading

Cindy Z., Adrenalectomy

My story starts a little differently than most I’ve read. In 2000, we moved to California. I’d always been a walker, but in CA, my route was a three mile loop I liked to do and the first mile went straight up a very steep hill. This became my choice for a daily walking spot. Shortly after starting the hill walking, I had horrific pain in my leg and could hardly put any weight on it. I thought it was a groin muscle pull, but it turned out to be a fracture at the top of my femur bone in my hip.… Continue Reading

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