Leslie Edwin, Author at CSRF - Cushing's Support & Research Foundation

Author Archives: Leslie Edwin

Melissa C., Adrenalectomy

My name is Melissa and I am 54 years old and live in the Boise, Idaho area. I am 11 months post op adrenalectomy due to a functional tumor that caused my Cushing’s syndrome. I have a 20-year career in the military followed by work as an Occupational Therapist. I was adopted by a loving… Continue Reading

Lauren S., Transsphenoidal Pituitary Surgery

My diagnosis of Cushing’s Disease came in May of 2012, at the age of 57. I believe, however, that I had Cushing’s for years, even decades, before my diagnosis. Starting in my 30s, I was routinely covered with bruises from minor bumps. Neither my primary care physician nor my hematologist had an explanation for this.… Continue Reading

Will BLA Solve My Problem?

Question: I have confirmed hypercortisolism (enough highs after several months of testing) but no clear target. I’m morbidly obese, have lost my period, have new hair growth on my face, and almost all of the other classic Cushing’s symptoms. If I have a bilateral adrenalectomy and just remove the source of cortisol production, will these… Continue Reading

Loose Skin and Plastic Surgery

Question: I have lost over 100 lbs since the worst of my Cushing’s. I have a lot of loose skin including some on my neck and a fat roll in the middle that affects how my clothes fit. I’ve heard that patients in my situation can sometimes qualify for plastic surgery for medical purposes. Have… Continue Reading

Navigating the “Grey Areas” Post-Treatment Re: Cortisol Replacement

Question: I have had persistent Cushing’s since 2012. I’ve had a couple of surgeries, radiation, and about 18 months of medical therapy. I came off that when the radiation seemed to be working – I was losing weight, my hair was growing back, and I could sleep. I’m currently just shy of three years post… Continue Reading