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Author Archives: kkc

John Hopkins 7th Annual Pituitary Day

John Hopkins Pituitary Center held its 7th Annual Pituitary Day on Saturday September 19, 2015 at the Mount Washington Conference center in Baltimore, MD. Stacy Hardy and Renee Dorsey, CSRF support group leaders in the Washington DC area both attended. The meeting began with a welcome and acknowledgments from Dr. Roberto Salvatori, M.D. who isContinue Reading

Diagnosing Cushing’s — Patient Experiences and What They May Mean for Doctors

As a neurologist and head of university outpatient departments in Germany, I see many patients with pituitary adenomas. In this capacity, I oftentimes hear the stories of patients with Cushing’s disease (CD; pituitary-induced Cushing’s) after years of bothersome symptoms and a long and winding road through the medical system before the correct diagnosis of Cushing’sContinue Reading

Editor’s Note on Diagnosis

As patients, most of us have experienced the frustration of a delayed diagnosis. Our recent small survey again illustrated this problem as only 8% of respondents reported being diagnosed after seeing just one medical professional. We also found that the medical professional you thought could have first considered Cushing’s as a diagnosis, spans the realmContinue Reading

Ashley C., Transsphenoidal Pituitary Surgery

I had always been a happy, energetic, and athletic child, constantly laughing and participating in a number of extracurricular activities. I was always a social butterfly with many friends, always sleeping out and having fun. It was not until I reached the middle of my eighth grade year that I started to notice a number of odd changes to my appearance and my personality.Continue Reading

Marian U., Adrenal tumor

The changes came about gradually. So gradually, that it is very difficult to pin-point exactly when the overall change became larger than the sum of individual changes and became something that was difficult to ignore. For my whole life, I was “Marian” and then one day, I was someone else. I had become someone unrecognizable: the “Not Marian.”Continue Reading

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