kkc, Author at CSRF - Cushing's Support & Research Foundation

Author Archives: kkc

Rachel W., Pituitary Tumor

My journey with Cushing’s Disease started in high school, though I didn’t know what it was at the time. From my junior to senior year, I gained over 100 pounds and didn’t know why. My doctors and parents attributed it to depression caused by my parents’ divorce.… Continue Reading

Van N., Adrenal Tumor

I am a twenty four year-old female who had an adrenal tumor. My main symptoms were depression, anxiety, panic attacks, insomnia, acne, body hair, fatigue, joint pain, no menstrual cycle, and hair loss. … Continue Reading

Nicole R., Medication Induced Cushing’s, Pituitary Tumor

I have always been an active, slim and healthy person, but about 2 years ago that changed. I woke up with horrible shoulder pain that progressively got worse. I eventually went to my GP and got a cortisone shot in my shoulder. It worked for a bit but 3 months later, I needed another.… Continue Reading

Tony H., Ectopic Cushing’s

My name is Tony and I live in Georgia. I have been married for 10 years and have 2 amazing children (5 and 10). I am now 38 years old, have had Cushing’s syndrome and this is my story:

Nearing the end of summer in 2011, my wife and I began to notice changes…fast weight gain (we tried every diet known with no success), large stretch marks, acne breakouts on the back and chest, mood swings and issues with anger outbursts, weakness in muscles, ankles that would dislocate all the time and bruise badly, cracked and broken ribs from doing hardly nothing, and the list goes on and on.… Continue Reading

Genetic Changes Found in Cushing’s Disease, Adrenal Tumors and Adrenal Hyperplasia

Cushing’s patients often ask their physicians what caused their rare disease; they want to know if it has anything to do with their DNA and whether it can be inherited. Changes in the building blocks of genes (i.e., mutations) do indeed play a role in the development of tumors that increase adrenocorticotropic hormone (ACTH) or… Continue Reading