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Author Archives: Leslie Edwin

Wendy M., Transsphenoidal Pituitary Surgery, MEN-1

My name is Wendy Moses and I was diagnosed with Cushing’s Disease at the age of 10 in 2009. I had been dealing with weight gain, growth suppression, headaches, muscle weakness, and insomnia since 2007. A couple of nurses at our church said the weight gain would be solved with a growth spurt and we shouldContinue Reading

Clinical Trials

Introduction Another resource offered by the U.S. National Library of Medicine is the database of interventional and observational studies that can be found at http://www.clinicaltrials.gov.  Interventional studies are also commonly called clinical trials, while observational studies do not involve any sort of intervention or treatment.  Studies in all stages are listed on the website forContinue Reading

Adrenal Insufficiency in Adults, Stress Dosing, and Adrenal Crisis

Dr. Anthony Heaney, Co-Director of the UCLA Pituitary and Neuroendocrine Program and President of the International Pituitary Society, presented two sessions titled “What are the causes of adrenal insufficiency in adults and when do I need to stress dose?” and “What is Adrenal Crisis?” at the AIU conference.  The following is my interpretation of theseContinue Reading

New Approaches and Treatments in Adrenal Insufficiency

Adapted from a presentation at the AIU conference by Dr. Mitchell Geffner, Children’s Hospital of Los Angeles, CA The structure of cortisol was discovered in the 1930s.  By the next decade scientists had developed a way to create a synthetic replacement, a substance known as cortisone.  The 1950 Nobel Prize in Physiology or Medicine wentContinue Reading

Emotional Health in Adults with Cushing’s and Adrenal Insufficiency

A summary of the AIU meeting presentation by Kyle Gillett, PhD, LMFT, Asheville, NC We need to broaden and never pause in the conversation about mental health, depression, and neuropsychological changes due to excess or deficient cortisol.  There is no room to consider them any less important than our other symptoms.  The average risk ofContinue Reading

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