Links
Addison’s Disease Self Help Group (Adrenal Insufficiency): This UK patient support group website has very useful information about daily cortisol replacement doses as well as the dosages needed for surgery or emergencies.
National Organization of Rare Disorders – NORD: Provides information on rare disorders, government regulations, travel assistance for patients, etc.
National Library of Medicine: You can do your own search of the medical literature on this site. Select PubMed from the database to search menu and enter Cushing as your search criteria.
Clinical Trials and Research: You can find clinical trials or clinical research on Cushing’s at ClinicalTrials.gov. UseCushing’s as a search criteria.
MEDLINEplus® brings together, by health topic, authoritative information from NLM, the National Institutes of Health (NIH), other government, non-profit and other health-related organizations. Preformulated MEDLINE searches are included in MEDLINEplus and give easy access to the medical research literature. It also provides you with a database of full-text drug information and an illustrated medical encyclopedia.
Endocrine web: Detailed but easy to understand pages on endocrine disease, conditions, hormone problems, and treatment options including all types of thyroid, parathyroid, and adrenal surgery. All pages were written by physicians who treat these diseases.
MEN1 Support:
ACOR, (Association of Cancer Online Resources), is very pleased to announce a new MEN1 (Multiple Endocrine Neoplasia Type 1) information and support e-mail list. This list was created to offer caring, support, guidance, and up-to-date information on living and coping with Multiple Endocrine Neoplasia Type 1 (MEN1). All are welcome to join.
Addison’s Disease (Adrenal Insufficiency) National Adrenal Disorders Foundation
Adrenal Incidentalomas: The evaluation and treatment of accidentally discovered adrenal tumors was the subject of an NIH consensus conference. Read the statement at in the 2002 archives at: http://www.consensus.nih.gov/.